Parenting: My Personal Struggle with Fear

sister shirtWhen my daughter, my oldest child, was in preschool through elementary school, she was so spunky and smart with just enough stubbornness to call it determination mixed in. I truly felt she would conquer the world, a neatly packaged redheaded blue-eyed force to be reckoned with. When the middle school years hit, she changed. The bullying started and she became fearful and worried more and more.

Many nights I’ve knelt by their bed and prayed over both my son and my daughter, but I’ve spent a lot of time worried for my sweet sensitive girl. Her dad and I divorced when she was three. I remarried when she was five and he left me two years later. When she was sixteen, my youngest son at age ten was diagnosed with an incurable brain abnormality and underwent brain surgery to help restore flow between his brain and spine. To say our whole world flipped upside down that year would be an understatement.

I have been remarried now for nearly ten years to a good Christian man and stepfather. I’m a stepmom to a very determined handsome high school freshman. My son, now thirteen is doing very well and surgery, although scary, has been an answered prayer. We have worked very hard to blend our family and move forward.

My daughter is a sophomore in college now. She is still spunky and very smart but her struggle is real. She wrestles with who she is versus who she thinks she should be. She worries that she is not good enough to succeed.

why i didn't rebel 2I have been reading a book by Rebecca Gregoire Lindenbach called Why I Didn’t Rebel. In it Rebecca shares her own personal encouraging story of how she made it through the difficult teen years while staying true to her values, faith, and family.

The other day I was reading her chapter on Expectations where she wrote: “Looking at all these stories, I saw a pattern emerging:  families who expected their kids to rebel were scared, and families who didn’t expect their kids to rebel had a lot of faith in their children.” It was like gaining admittance into a secret room where parents are typically not allowed and God used her words to illuminate some shadowed corners of my soul.Why I Didn't Rebel

It revealed to me that unconsciously I’ve been parenting from a place of fear rooted in guilt. The more she struggles the more fearful I become because in the innermost part of my heart, I worry that my failures will cause her to rebel and ultimately fail. I know this is not what God wants for my family or my daughter.

For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. 2 Timothy 2:7

Parenting is hard and divorce and remarriage is messy. Blending a family only makes it more complicated. Why I Didn’t Rebel is like a breath of fresh air. Drawing me out, helping to replace my pessimism with perspective straight from the proverbial green grass on the other side. It tackles issues parents face today while giving candid insight on balancing them with healthy boundaries and expectations that actually work.

Why I Didn't RebelFor I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11

Thank you Rebecca for allowing God to use you to write this book to rekindle hope in parents who may be struggling with discouragement. My girl may just conquer the world after all.

 

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Why Purple Sometimes Makes Me Cry

My Son Chiari WarriorSeptember is Chiari Malformation awareness month. To be honest, I didn’t know there was such a month until my social media began to fill up with purple. So I began to look up quotes and things that I could post on my sites in order to bring awareness and as I was pondering this issue a flood of emotion began to squeeze my throat as I really reflected on just what Chiari has taught me.

Chiari Malformation is what my then ten year old son, Luke was diagnosed with just one year ago. Chiari turned our world upside down. Chiari was a game changer. Chiari taught me just how strong a mother I really am. Chiari taught me about the warrior heart my little boy has inside of him. Chiari has shown me just how much the Lord Jesus loves not only my son but how much He loves me.

The color purple typically stands for invisible illnesses and conditions that can be debilitating or even fatal with no cure. Invisible illness meaning a person painfully hears the words often uttered “he/she/you don’t look sick” or show outward signs of the battle raging inside their body.

Purple. Invisible illness. What no one sees.  Like when my son was diagnosed and suddenly reality got very real. Invisible illness. Purple. As my spirit began to fill with fear as I read all the possible neurological problems that can come with this monster. Night time was the worst for me. Purple. Invisible illness as in no one knowing how I would tuck Luke in, hug him tight and every time I turned out the light and walked out of his room I felt I was leaving a dark presence hovering over him named Chiari. Invisible illness and purple as in no one seeing from the time he was diagnosed until his surgery, night after night I would set my alarm every few hours to get up to check on him because Chiari can block the CSF flow and not send the signal to tell my sweet little boy to breath or not tell his heart to beat. Words can’t describe how my feet, so burdened with fear, would walk me up to his bed heart pounding for what I might find.

IMG_20150203_055813668But here is the twist…Luke, after the initial fearful reaction to learning of his diagnosis and impending brain surgery slept with a peace that I had never seen before. (You can read my post here: How to tell your son he’s going to have brain surgery without exploding into a million pieces.) 

Because for him what I saw as purple, invisible illness, a monster named Chiari; he saw God. God turned our world upside down. God was a game changer. God showed him just how strong a mother he has. God showed him the warrior heart he has inside of him. God has shown him just how much He loves him and how much He loves me and has done it all through Chiari.

Now the color purple has taken on a whole new meaning to me and yes it causes me to cry. Not because he has Chiari but because it reminds me of the warrior spirit of faith and the power of prayer that has grown from Chiari; grown in my family, in my son, in me. Purple reminds me of the absolute power, the incomprehensible grace and God’s perfect plan that although is not always understandable but will always make us all the better for it.

Psalm 138:3 and 138:8 “In the day when I cried out, You answered me, And made me bold with strength in my soul.” “The Lord will perfect that which concerns me; Your mercy, O Lord, endures forever; Do not forsake the works of Your hands.”

blog chiariMy son Luke feels better than he has ever felt since his surgery. It breaks my heart how he must have suffered before being diagnosed, when we were told he was just dehydrated. Please help share and spread awareness about Arnold Chiari Malformation. Someone you may know and love could be suffering with this and not know. For more information on Chiari and how to help:

http://asap.org/index.php/disorders/chiari-malformation/

http://www.conquerchiari.org/index.html

http://www.ninds.nih.gov/disorders/chiari/detail_chiari.htm

Disclaimer: These images and links are used for the sole purpose of awareness and information. I am not receiving any monetary gain.

How Do You Tell Your Son He’s Going to Have Brain Surgery Without Exploding Into a Million Pieces?

Luke meeting his baby cousin last year.

Luke meeting his baby cousin last year.

The house is quiet, really quiet. Every one is sleeping in on this rainy Saturday morning….everyone except me. I don’t feel like I’ve really slept since October. Since my son, Luke (I affectionately call him buddy) was diagnosed with chiari malformation. Words like “incurable”, “brain surgery”, and “severe pain” seem to be bouncing around as soon as my head hits the pillow, along with slight shock and disbelief. Wow! How did we get here?

I keep thinking back to the day when we learned Luke was going to have brain surgery….I got the call while Luke and I were riding home from another appointment. I remember we were singing and laughing when the neurosurgeon’s office called and told me that his test showed a significant flow reduction and we needed to come in and get him scheduled for decompression surgery.
My mind began to reel. My breath caught in my throat. I guess the shock of it all kept me from bursting into tears. I robotically went through the motions of scheduling the appointment but my knuckles were white from gripping the steering wheel so tightly. I turned to my handsome little man next to me. How do you tell your child that they need brain surgery without exploding into a million pieces? I sent a prayer for words of wisdom and began to calmly explain to him what was happening.

“Luke, do you remember how we have prayed and prayed that the surgeon would have God’s wisdom in knowing what is best for you? Well, God has answered our prayers Buddy.” He looked at me briefly as I saw understanding creep into his blue eyes. “He thinks I need surgery, right?” “Yes buddy.” He immediately burst into tears as that understanding was replaced by fear. “Luke, it’s ok to be scared and worried and cry. You might see mommy cry too, but we are also going to thank God for answering our prayers. It may not be the answer we want but I know He is going to take care of you and guide that surgeon’s hand. We are going to get you through it one step at a time and then we are going to praise and thank God and give Him the glory for answering our prayers and being with you through it all.” He slowly nodded as I watched him brush the back of his hand over his eyes trying to fight back the fear and the tears.

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When we got home, instead of turning on the TV, he ran straight for his room. Trailing behind him, I walked in to see him drop to his knees by his bed, clasping his hands in prayer crying. He was saying something over and over but I couldn’t understand so I went closer and sat next to him. “Thank you. Thank you.” He was whispering between gasps and tears. He then reached around to the back of his head with his small hands and began to pray and beg God to give him strength to make it through. It was one of the most precious and heartbreaking moments I have ever known. I let the tears fall quietly down my face as I prayed beside him and let him pour out his heart to his Heavenly Father. Oh!! The strength and faith in that little boy was astounding! I briefly thought of the verse in Matthew 18:4, “So anyone who becomes as humble as this little child is the greatest in the Kingdom of Heaven.

I gently pulled him up and into my arms. Drawing all my strength I said, “Luke, like I said before it’s ok to be scared and cry, but let’s wait until it’s time. You are not having surgery today or next week. We are going to enjoy the holidays and spending time together with family and we are going to pray until then. He has been with us so far and He will continue with us every step of the way. Let’s worry when the time comes.”

Well that time is now fast approaching and in a week my little guy will be going in for surgery. I am having a hard time with it. As a Christian mother I know that God is honestly truly with us. I have never felt His presence more than I have since all of this started; felt a peace in my spirit that I can’t explain. (Philippians 4:7 “Then you will experience God’s peace, which exceeds anything we can understand. His peace will guard your hearts and minds as you live in Christ Jesus.”)

But as Luke’s mommy, I am heartsick and terrified. My worries and fear seem to sit on my shoulder and threaten to drown me. I honestly do not know what I would do if I didn’t have the Lord giving me strength. My emotions are all over the place. And my sweet little Luke;  I can’t hug him enough. I can’t kiss his head enough. I can’t thank God enough for giving me the unspeakable honor of being that little guy’s mom. Of having the honor of comforting him, holding him and guiding him through this life.

There is that peace again, stirring up in soul, creeping up into my spirit and touching every corner of my heart. I will allow God to continue to guide me because He is allowing me to guide Luke. And I whisper just like he did between gasps and tears, “Thank you! Thank you!”

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